Category Archives: News / Research

Stay Well During the Holiday Season

Happy, healthy snowman

If you have a chronic condition such as multiple sclerosis or even if you are in great health, it is important to protect against common illnesses that can ruin your holiday fun. The most prevalent things that are running around out in the world this time of year are the common cold, influenza (the flu), and pneumonia. The last two illnesses are very serious and can land you in the hospital if you are very young, elderly, pregnant, have a compromised immune system, or just happen to contract a serious case. Unfortunately, it is not uncommon for people, particularly the elderly, to die from the flu or pneumonia.

The following guidelines can help you to avoid these maladies and continue to enjoy the season:

Consider getting the flu shot

If you are elderly, have a chronic condition, a compromised immune system, if you work in healthcare or in childcare, or if you just want to play it safe, consider getting a flu shot.

The flu shot is administered yearly in the fall through the winter, and it helps to prevent the influenza virus. There are many hospitals and associations that administer the shots as an all-day project, especially for seniors. A few years ago there was a shortage of flu shots, but this year that is not the case. *Always consult first with your primary care doctor before getting the flu shot.

Wash your hands

This tip seems so simple, but many people disregard hand washing. It is important to wash before meals, after using the bathroom (especially a public one), after touching something many others have also touched (door knobs, shopping carts, money, the ATM machine, etc.), and before preparing food. If you are already ill or are in contact with someone who is ill, you should also wash frequently to avoid spreading the illness.

Unfortunately, if you are out at the mall, you may not have a sink nearby to use after touching a dirty shopping cart. A great way to clean your hands in public places is to use hand sanitizer, which is an alcohol-based product that comes in small containers, like hand lotion. This product can replace hand washing when you can’t get to a sink, and it kills about 99% of germs. It’s a good idea to get a moisturizing one, since alcohol can be very drying to the skin.

Eat well, sleep well

In order to stay healthy, you need to continually refuel your tank. Part of this refueling involves eating good, vitamin-rich foods. It’s so easy to reach for the tasty junk food at this time of year. Everywhere people are eating cookies, candy, drinking egg nog, and devouring other rich foods. Try to eat a well-balanced diet rich in protein (lean meats and fish), fiber (fruits, vegs, whole-grain breads), and low-fat dairy products (yogurt, milk, low-fat cheese,etc.) These types of foods will keep you energetic and happy, and ward off illness. Plenty of fluid intake also wards off dehydration. Avoid eating too much sugar and too many processed carbs (donuts, cookies, cakes) because they will sap you of your energy and they provide little nutritional value. Save the rich stuff for the actual holidays and visits with loved ones.

Sleep is another source of fuel to keep you running at your best. The holiday season is stressful, but it’s important to get enough rest. Without proper sleep your body will crave sugar and processed carbohydrates to give it a quick energy lift. This cycle only makes a person more tired. In order to function this year, try to refrain from doing everything all at once or at the last minute. Schedule ample time for shopping and cooking. Don’t visit too many people all in one day. Try to spread out your schedule so you don’t run out of steam. Most importantly, take a nap if you’re tired and you have the time.

Avoid sick people

The best way to avoid getting sick is to avoid sick people. If you have a compromised immune system, it is even more important to follow this tip. It will be difficult, but try to avoid prolonged contact with large groups of children (in schools or day care facilities) and prolonged time in healthcare facilities such as hospitals or nursing homes. These places are where viruses and bacteria are easily spread. Sometimes it is impossible to do this, so remember to take along a hand sanitizer and wash your hands often. Also, if you know someone has a cold, don’t feel bad about visiting them once they’re well again. No one wants to spread their germs and ruin another’s holidays. This also holds true if it is you who has the cold or flu—- try not to give the unwanted present to someone else.

****For further information about receiving a flu shot, see The Mayo Clinic.

Gift Ideas for People with MS

The holidays are upon us and it’s always nice to express some love with a gift. Folks with multiple sclerosis enjoy a lot of what others without MS do, but we often have special requests that can help our lives be a little comfier, calmer, and a little easier. Here are some gift ideas that MSers will appreciate and put to good use (bear in mind that some of the ideas– massages, cooling vests, audio recorders, and cleaning services– should be cleared with the gift recipient ahead of time):

Google Images

Gift cards for massages/ spa treatments

It’s great to be pampered and to have someone massage achy, stiff muscles or just have the opportunity to melt into the massage table as the healing power of touch takes over. There are a variety of massage treatments such as reiki (the application of the hands to certain “trigger” spots on the body), reflexology (a thorough foot/lower leg massage), hot stone massages, scalp massages, and so on. Other spa treatments such as manicures, pedicures, and facials can also lift the spirits.

Gifts to ease the daily routine

MSers want less stress and less tiresome chores. A gift certificate for a cleaning service (whether a large company or one professional) can make a huge difference. Several people chipping in resources to have someone do the heavy cleaning just once a month can make an excellent, thoughtful gift. Gift “vouchers” from family and friends to provide services such as babysitting, cooking, raking leaves, shoveling snow, or grocery shopping will be treasured.

Gifts for outside comfort and functioning

Cooling vests, which are used to keep MSers from overheating, make great gifts for the long summer months and year-round for those who live in warmer climates . Heat exacerbates many MSers’ symptoms, so these cooling vests can keep us out in the game for longer periods of time. Voice recorders, which act as “audio lists”, help those with multiple sclerosis remember grocery lists, errands, and phone numbers without carrying a lot of paper lists. Both cooling vests and voice recording products can be researched through contact with your National MS Society local chapter (U.S.) or an MS organization in your region of the world.

Gifts for outside entertainment

We also like to leave the house! Movie tickets, restaurant gift certificates (less cooking), tickets to plays or shows, and even free invites to sports events and friendly gatherings will be well-received. Making weekly dates for lunch, tea, or coffee can also put a smile on an MSer’s face.

Gifts for home entertainment and comfort

Things that make home life easier include movie subscriptions (Netflicks or Blockbuster), favorite magazine subscriptions, favorite DVDs, music CDs, print books, and audio books (for impaired vision.) An assortment of coffees and teas can make a great inexpensive gift. To make life a bit comfier, give the gift of comfortable but attractive activewear: there are many velour warmup suits and comfy men’s sweatsuits on the market that make movement more fluid and life more cozy. Warm, fun socks keep cold feet at bay. Perhaps the most unusual idea for an MSer is the gift of one or more attractive night lights. Walking in the dark to get to the bathroom or to the kitchen for some water can be a minefield of obstacles and sharp corners. Someone recently gave me a couple of pretty, stained-glass night lights to illuminate my path. I adore them.

A Neuron Gene Linked to Multiple Sclerosis?

I received a recent article from my Nat’l MS Society chapter about the discovery of a defective gene that might be linked to multiple sclerosis. Of course I sat up and paid attention! Scientists worldwide have been trying for years to establish a definite genetic link that may run in families and increase family members’ risks for developing the disease. There are plenty of clans who have several members living with MS, and they can trace back generations of people who also had it. So finding a link can be the beginning of targeting a defective gene and possibly creating medications to protect fragile genes in MSers or establishing vaccines to prevent the disease…… Well, let’s just say science is off to a good start:

DNA Double Helix, Google Images

A study in Europe found that specific genes within long neurons (metre- or yard- long) that transport signals between the brain and spinal cord are actually defective in a group of relatives living in The Netherlands. The type of gene, known as KIF1B, has the job of “powering” signals within these long neurons, thereby sending important information between the brain and the spinal cord.

A second study examined this gene among a larger group of northern Europeans and learned that there is a slightly higher incidence of MS in people who exhibit this mutation.

At this point it is not clear whether the defective gene causes MS attacks (due to the immune system viewing the mutations as foreign matter?), or the genes leave the neurons especially vulnerable for MS attacks in those who already have multiple sclerosis (due to the length and fragility of such neurons), causing more damage to these neurons compared to those of MSers whose KIF1B genes are not defective. In the meantime, this discovery leads scientists to more genetic testing which includes studying MSers with the mutation versus those without. Such further research could help to establish how the defective nerve tissue deals with an MS attack, thereby posing a possible link between the gene mutation and degenerative MS compared to standard KIF1B genes and less progressive MS.

*For more information about this breakthrough research, see the news article provided by The National MS Society: New Jersey Metro Chapter.

The Afterglow of Joan’s Chat Room

Joan's Chat Room

Joan keeps rounding up more MSers at her chat room. Last night there were several Delawareans, the usual Taggie from Ohio (who is an absolute hoot), Denver Refashionista (she always likes to come on for a while), and Lisa from Brass and Ivory! Too funny. I think at one point we were talking about hamsters and guinea pigs? Wine and cruises were also discussed. Joan then had a good MS quiz about dealing with holiday stress. For someone who deals with pronounced fatigue, this is very important to her and others could definitely relate. The takeaway was that we MSers must care for ourselves first and put our feet down against unnecessary stress and demands. What a good topic for the evening. Thank you so much again, Joan. You’re the friendliest chat hostess and I’m sure everyone else can agree.

Joan’s next chat will be in early December. I wonder what the next topic will be?

New,Thinner Needle for Betaseron

I’ve been taking Betaseron (interferon beta-1b) for over three years and this is the only disease-modifying drug I’ve tried. Everyone is different, but for me this medication has worked well and has actually allowed me to recently go two years relapse-free instead of having the usual annual attack. So the news of a thinner needle excites me. Rebif has been known in the past to have the thinnest needle (29-gauge) out of the three subcutaneous injectable drugs–Copaxone, Betaseron, and Rebif. Now Betaseron’s 30-gauge needle (replacing the original 27-gauge one) is the thinnest on the market. For patients this means a possible decrease in skin surface reactions and pain. This same size needle is also used for pediatric injections and insulin treatments for diabetics.

Along with the thinner needles, a new autoinjector has been created. Old autoinjectors are not compatible with the new needles because they might not fully administer the entire dose of Betaseron.

New needles and autoinjectors are expected to be available this month (November 2008.) To find out more about switching to the 30-gauge needles, contact BETAPLUS (formerly MS Pathways) at 1-800-788-1467.

References:

Stories of MS Strength

I started this website with a vision to empower and inspire other MSers who search the internet for multiple sclerosis information, news, and stories. I guess it’s been a little pipe dream of mine because I like to write and I also like to help others (I spent the majority of my short career in the health and public service realms.)

Recently my website underwent a name change, due to copyright infringements with another website. MS Friend became MS Strength in a matter of a week. I think this new name is an improvement, something of an upgrade: this site is gonna rise to its true, gritty, ballsy name. It will keep me on my toes as I attempt to present what I know and what I learn about MS. My own multiple sclerosis story is currently good, as I relax a bit from the chaos, pain, and grit of the last several years. To view my own journey, check out the “Categories” link to “My Personal MS Story” in the right margin.

I’d like to present some other stories of MS grit. I read several blogs and find such courageous people living day in and day out with multiple sclerosis. I’ve been to several seminars where I’ve met other MSers and I have to admit that a few were big sulkers. When I say “sulkers”, I am speaking about people with MS— generally with moderate disease courses— who complain and have nothing but negative comments to make about their lives and their conditions. They don’t appreciate any of the available medications and don’t want to try any of them, they are depressed but make no effort to change their situations, and they bring nothing of their true selves— their true grit— to the table.

The following links lead you to some of the best, current stories of MS strength that I have personally witnessed. These people plug on and demonstrate grit in the face of adversity, which is what MS strength is all about:

All of these MSers demonstrate true MS strength under pressure. It is with honor that I can present their stories to you in an attempt to give you inspiration and strength during troubled times.

Sincerely,

Jen

Everyone Go Over to Joan’s Chat Room!

Just a brief plug for Joan’s chat room. Her “A Short in the Cord” blog has a link to Friday night chats, which originally started as a place for Delaware MSers to convene. The schedule is two Fridays a month, and the next one is coming up this Friday (the 26th.)

I logged on during Sept.12th’s session and was greeted by Joan and two other ladies. Joan and (I believe) Nightmare stayed on and we rapped about our health, where we live, different MS societies and other MS associations, and support groups. Of course there were also jokes and laughs. I had never experienced a chat room and was fumbling to type fast enough (I look at the keyboard and my hands.) No matter— the errors were half the fun!

Check out Joan’s blog homepage for more info (upper right corner.) It would be cool to actually converse in real time and start some interesting discussions.

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