Multiple Sclerosis and Blogging

Microsoft.com

Okay, I’ve been blogging now for almost 2 months. As a writer for a women’s health website, I have a tendency to report the facts, mainly from the 3rd person perspective. I research health topics and collect my sources to document at the end of the articles. I have journalistic instincts in my blood (probably dates back to college, where I wrote plenty of papers towards an English degree.) I learned how to write from the opposing view (playing devil’s advocate?) I even wrote a (very bad) screen play! But blogging for the public eye……This is quite new.

What I’ve learned so far from this experience is that I am still quite a journalist and my site is a bit of a hybrid. I like to think of it as a website with a blog format. My husband Bill is the website development nerd: he knows how to create them with HTML, Frontpage (a formatting device), search engine optimization, and reciprocal linking. I am more of the creative force, concerning myself with the writing, photo selection, internal linking, and commenting. Together we’ve created a website which happens to have a blogging format— WordPress. A couple of times I’ve had to tone down his entrepreneurial instincts with the plea, “It’s a website, but it’s about a personal topic— people’s health.”

That said, I’ve actually found blogging to be a cathartic activity. I’ve posted at MS message boards before, under the anonymity of a user name. Here, my MS story is open and available to many people— strangers, loved ones, new blogging acquaintances. It is a place to drop some guard and post what’s really on my mind. Yet the journalist in me still tugs in the direction of business. So a hybrid website it is. A touch of personal with a dash of unbiased journalism. And of course, search engine optimization….

What I’ve found and liked in others’ multiple sclerosis blogs are the real, raw emotions. I’ve (slowly) read a few other sites and have found them so open and honest. Writers blog about their symptoms, their limitations, their strengths, and their frustrations (usually towards the health care industry.) I’ve read some poignant poetry, some gratitude lists, a bit of news about the gay and lesbian communities, and rants about the US’s sh-tty health system and insurance industry (and Canada’s more universal coverage— Michael Moore: you were right!) I think one of the most touching blogs is one in which the writer vents but does not comment or link to others. Almost a private diary, but with the benefit of letting others listen.

So I think I’ll always have a bit of the journalist’s eye, deciding on key word density and internal links that make articles and blogs easier to find in a search engine. Can’t help it. My other health site’s pretty much brainwashed me into doing this! But I’ve learned from other MS bloggers the joy and freedom of letting down some guard and writing from the gut. For such reads, it’s good to start at the MS Carnival of Bloggers homepage, where you will find links to many bloggers and their personal MS stories.

To wrap things up, I like to think of a blog as a loose-leaf notebook, with many pages in chronological order. Now, imagine opening up that notebook on a windy day. You’re maybe trying to remove a page from the binder, and whoa!—- they start flying out everywhere. But think of a person stumbling upon one of those pages and being touched by what you wrote. Another person comes across a tattered page, found on the street many miles away. Blogging is like sending out pages of a private notebook to the wind. No matter what the format (journalistic, personal, ranting, prayerful), the end result is touching a complete stranger’s life and making them feel a connection.

7 comments

  • Hi Jen,

    I’m glad that you are beginning to ease into the MS blogging mode.

    I’ll be quite honest with you. When you first submitted something to the Carnival and I saw you scattering comments around the blogs, I became very suspicious. There are too many folks who are simply out there to make money off of others. And I found that a website named MS Friend by someone who had not ‘made friends’ out in the MS blogosphere was disingenuous.

    I almost didn’t include a link to your blog in that Carnival edition, but I decided to give you the benefit of the doubt. But I did discover that you wrote at the Suite101 site and that didn’t help me to develop much faith in you based on that either.

    One of the things I personally do not like to see out in the blogosphere are site which just use recycled information and don’t add any value, MS Observer is one such site. Or the sites which are simply places to collect excerpts from blogs, posted under various names, and link back to the original (maybe).

    Ok, so now I’m into a full rant. Sorry, it’s not you personally.

    Although……the categories you have going over there on the sidebar make me think that they will lead to blogs found on other sites. More like resources, than you’re own writing. Remove the term ‘blogs’ and you’ve got something better going, IMHO.

    And, the abundance of Google Ads takes away from the experience of reading thoughts and research conducted by a real ms person. Still gives me pause. Also, I kinda don’t like the ‘Recent Reader’ widget. It feels like a violation…and I usually read from Bloglines anyway.

    Ok, so I think I’m done. But Jen, know that no-way no-how would I ever go on like this if I hadn’t developed an appreciation for you as a real person behind this website.

    And, btw, thanks for the shout-out for the Carnival.

    Again, thanks and my rant is over.

  • I stumbled on the Carnival of MS Blogger when I was first diagnosed in Feb 2008. It has opened my eyes to the MS world and allowed me to realize I’m not all that crazy. Thanks for sharing this post.

    -Brian

  • Blogging allows me to write and then let go of the things that try me. My blogs give me a venue for pics and a whole new audience to bounce ideas off of. I feel supported and validated by the comments left by other readers with MS. I have really come to love and value it.

  • Jen

    Hey you guys—

    Thanks for the comments. I enjoy what I’ve read so far, blog-wise. Everyone’s got a different spin on things. I have to say that I’ve only read a few so far, since I want to slowly get acquainted with each writer and their story.

    Hi Lisa—

    Wow– ouch! Tell me how you really feel…Ha ha!…Didn’t know I struck such a nerve (no pun) with you. Well, anyway, such is the dilemna with writing for more of a website than a blog. Like I said, it’s a hybrid. And YES, it’s got ads. I’ve seen a couple of others like this, that also include Amazon ads. But I’m hoping the intelligent readership here (at Blogspot) knows the difference between my writing and the Google Ads. I’m betting on it. It’s nice to read other blogs and have people come and read mine (at no charge.) Although if someone wants to look at an ad, I guess that’s their business. Just like at Suite 101, people land on my pages through a Google Search (using key terms) and if they want to peruse ads, they can. That’s the beauty of free enterprise.

    Anyway, I agree with the Widget. It’s spooky and I feel like people are watching me! Gotta talk to Bill about that. As for the rest, potato – poTAHto, right? Hope this for-profit format doesn’t turn you off from reading—- remember, it’s free if you don’t click on the ads….

    Take care.

    Sincerely,

    Jen

  • Jen,

    I’m laughing at myself now. Wow, I was harsh. I’m sorry, it comes from previous experience, not you. I really didn’t mean any harm and hoped that you’d take it that way.

    I’ve even added a few Amazon links on my own site, but it’s not like I’ve earned anything from it. I don’t have the answers on how to monetize a blog and you have every right to figure that one out. I wish you luck.

    I’m just sharing first impressions which were obviously wrong.

    Your friend,
    Lisa

  • Hi Jen:

    You are right in saying that blogging is cathartic.

    Sometimes your topic hits a nerve and all of a sudden you get zillions of comments. Days or weeks can go by and no one comments. Does that mean I need to change what I am saying? Nope. It just means that other MSers are busy with their life and will pop in on your blog when they have the time.

    So keep on, keeping on.
    Anne

  • Jen

    Being the vampire that I am, I’m still up…..Waiting for Chelsea Handler to come on at 11:30pm. Man, she is one mean broad! Makes you, Lisa, seem as sweet as molasses.

    Haha!…I’m only teasing you, Lisa. Really, I’m not offended, and as John Chow, from John Chow.com says, “You’ve got to take criticism in stride. Blogging will cause positive as well as negative comments.” Or something to that effect.

    This is what I know about Google Ads: they take a while to add up. Web writing isn’t extremely profitable, unless you write for a site like About.com, because they are ranked high in Google and owned by the NY Times Corp. Yeah, I’m still trying to land a gig there (after being rejected 2x and then actually creating a mock site for Headaches & Migraines, then being rejected again….UGH.) Web writing and the occasional freelance articles for South Jersey Mom are my current gigs. I’m trying to expand.

    You’re an okay lady, Lisa, so goodnight and we’ll talk later (hopefully after I get that stupid widget with the spooky silhouettes and the tiger off my homepage! Bill’s idea of course.)

    Anne—

    Howdy and hope everything’s going okay in Pennsylvania. Yeah, I need to get away from this overheating computer and get a life.

    And you keep keep on, keepin’ on…?! I’m delirious. Good night.

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